Monday, June 02, 2008

Stiff upper lips

The Mail and the Telegraph have both picked up ( with palpable glee) on a a report from Mark Seery, an expert in the psychology of stress at Buffalo University, reporting that a stiff upper lip is the best way to deal with shock.

Actually, both papers have rather misrepresented the findings of the survey, which tracked 3000 people in NYC and Washington, none of whom had actually been personally involved in the 9/11 attacks, as survivors, or who had lost loved ones.

They were in fact, people who were on their database anyway and the study looked at whether they were talking about the attacks or choosing to carry on much as before, checking back on them over the next two years. The study found that people who had not elected to talk at length and dwell upon it seemed to be doing better, two years on, than those who had emoted at length.

Of course, people who talked about it might have talked about it in the first instance because it upset them deeply, and so they were still upset by it years on. And people who didn't want to talk about it in the early stages simply might not have had much to say about it, because they didn't feel especially affected by it when it happened. But it's still interesting, because in recent years, we've become used to hearing the solemn intonations on 24 hour news media, in the aftermath of a school massacre or a bomb blast in a highly developed Western country, that ''specialist counsellors are on their way to the area.'' And the idea that perhaps people might not want to talk about it has been presented as almost quite dangerous.

'You are getting counselling, aren't you?' people kept asking me after 7/7. Actually, I wasn't. What I wanted was rest, because I wasn't sleeping, and time off work, because I couldn't concentrate, and hugs from my partner, friends and family, and to go down the pub with other bombed passengers once a month and cheer each other up and encourage each other back on the trains and buses and to make each other laugh with the terrible grim black humour we had at the time .

Later I read up on this stuff, because psychology and trauma has interested me for several years now, and I found some studies that came out post 9/11 about the 'grief industry', in which it is assumed that thousands or hundreds of thousands of people would be deeply traumatised by witnessing the 9/11 attacks - even just on TV in some cases - and would subsequently go on to develop post traumatic stress syndrome. Accordingly, thousands of grief counsellors and trauma specialists descended to aid what was expected to be a stricken city. (See this article in The New Yorker for a good overview.)

However, it is now thought that early incident debriefing en masse - where groups of people are all put into a room and urged by a counsellor to relive the traumatic event in horrifying detail often a few days afterwards can do more harm than good. People, like animals have their own innate coping mechanisms and urging people to talk when they are still processing what they have seen and dealing with it in their own way - especially as a group rather than one on one - especially in the first few weeks and days - can simply retraumatise them.

A parallel can be drawn with the less news-worthy human experience of bereavement: when someone loses a loved one, most people's first thought for them is not that they must hie themselves to a grief group, or get into a psychologist's specialist clinic and discuss the passing of their loved one in awful detail, but simply to care for them, try to ensure that they are fed and getting some sleep and rest and support with everyday tasks, and to provide a listening ear in the months afterwards if their friend does want to talk - in their own time, in their own way - understanding that grief is personal and takes its own time.

People have their ways of coping. Often talking to friends and family, or keeping a diary, or going for a long walk or a work-out works better than talking to a strangers. Some people are most uncomfortable talking about personal things at the best of times, and extremely stressed at being considered a 'victim' - or 'survivor' - they quite understandably don't want the event that they had no choice in witnessing to 'define' them. And that does happen, especially in a highly mediatised tragedy. For many people, remaining as determinedly 'normal' as possible in the aftermath is a coping mechanism, and insisting that they are pathologised by pain feels insulting, if not downright damaging.

It's not always a case of putting the kettle on, or pouring a double scotch and keeping a stiff upper lip though. There are things to be aware of, and more people, thankfully, are now more attuned of the warning signs of when they or others are in psychological distress and need help to recover from a psychological injury ( which is what PTSD is - not a mental illness or weakness).

Piling into the alcohol or drugs or cigarettes, nights of insomnia, depression and survivor guilt, flashes of furious anger, loss of libido and a sense of emotional numbness or disconnected hopelessness, still felt months after the event are danger signs - as are headaches, flashbacks, increased susceptibility to illnesses, hair-trigger startle reactions, or the development of phobias or avoidance behaviour relating to things that remind the person of the traumatic event.

If after 10-12 weeks this is still going on, and the usual coping mechanisms - such as chatting to friends and family or others who were involved in the event, or burying oneself in work - are not working, and everyday life and functionality are still affected, then getting an appointment with someone who is trained in post-traumatic syndrome is advised. Cognitive Behavioural Therapy and EMDR have good track records for dealing in a very practical way with management of traumatic symptoms - and the good news is, appointments usually go on for a few months, rather than a few years.

But most people do bounce back in time, harnessing their own support networks and their own mind/body wisdom to recover from witnessing a terrible event. In the case of the 3000 stoic New Yorkers of the study, I am rather pleased that the findings disproved the ' let it all hang out and cry for the cameras/the therapist' meme. When I saw on the news that busloads of counsellors were being rushed to Virginia Tech to support the students after the shootings, I felt a bit anxious for them. I remembered what the trauma specialist told me in the weeks after 7/7. That yes, like others, I was shaking, chain-smoking, not sleeping, jumping, waking every hour re-hearing the screams and smelling the choking dust. And that he was not surprised. Because it had only just happened. And so what I was feeling was normal.

I found my own narrative, my way of pulling the threads back together and stitching the fragmented memories into a whole, over the weeks and months. I went back to work - on the tube - a few days after the bombs - and I wrote, anonymously, online, for half an hour a day and told unseen strangers more than I told my family and friends, because it felt safer to speak of it when I did not have to see the sadness on the faces of those I love. I went to the pub with other people from my train and got drunk with them. We emailed each other. When the flashbacks came, I knew what to do, because I'd had PTSD before. I trusted it would all get better in time, and it did. I was lucky. I was helped. I was not seriously and permanently injured, I was not bereaved.

It's not all about bombs these days. And I'm glad about that.

Linkback: Eddie Mair's blog.

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Friday, July 06, 2007

Not a good 24 hours

Thursday 5th July was not a great day. Did an interview arranged by the publishers with the Outlook programme, on BBC World Service, which was a good interview but which upset me more than I thought it would. Relentless calls and emails all day, and no internet connection so I had to decamp to an internet cafe full of noisy Algerian youths down the road in order to continue to work. I was glad to meet up at the end of the day with some friends from KCU (Kings Cross United, which is the Piccadilly line explosion support group), and with other friends who were involved at the other sites on 7/7.

The lovely George from KCU was telling me that he was already halfway through my book, Out of the Tunnel. I have a few preview copies, so I gave one to George when I met him earlier in the week. The book isn't out until next week but the copies people have pre-ordered from Amazon were dispatched early so some people have already got copies. I worry about the effect the book will have on people who were directly involved in 7/7. They do not need to be reminded of how bad it was: they already know. Out of the Tunnel is dedicated to them, and to all who have helped them, helped me come out of the tunnel and into the light, particularly the police and emergency services.

The book is told through my own experiences - a personal journey through PTSD, which I developed as a result of the two experiences I had in swift succession when I nearly lost my life through stranger-violence. I wrote it because I wanted people to understand more about this wierd psychological injury - which affects many, many thousands of people, not just bomb survivors, but people who work in the armed forces, the emergency services, war correspondents, as well as people who have survived serious accidents, natural disasters, rape, child abuse or torture and other life-threatening, psychologically-overwhelming situations.


When I first had PTSD I did not know what was happening to me. I honestly thought that I was going mad, and that I would never be able to function normally again. I could not understand why I was re-experiencing the event in my dreams, in flashbacks when waking, why it haunted me, affected my moods, immune system, ability to concentrate and get on with life. Surely, I thought, I should feel glad to be alive? Why do I feel guilty for still being here? Why am I so numb, so frozen inside, so angry, so sad? People are worse off than me.

My G.P was no help at all. So I looked for other people's stories to see if I was normal, to see if I would get better. There were many stories of survival, but very few about the long hard slog picking up the pieces in the aftermath. As to books about post-traumatic stress disorder, all I could find on it were medical textbooks, back then. Finally I found a website where people were sharing their stories anonymously. I shared mine and read theirs. I read up on what was happening to me and to them. I began to get better.

Last night the people round the table shared their feelings about how they were getting on, and how the last two years had been. None of them had heard of PTSD before 7/7 either. All of them had been helped by reading each other's accounts and listening to each other's ongoing stories in the months after the bombs exploded. We looked back on how far we had come. We drank to life, and health, and the future.

When I got home I checked my (mail) messages, and found a long angry message left for me by someone using a pseudonym, in which he demanded of me repeatedly why I ''felt so hard done by''. He had seen the report on the BBC, in which Thelma's quote about feeling like a ''forgotten person'' as she battled with the lengthy compensation process to prove that yes, she really did lose her lower limb on 7/7 , was used next to my photo, to infer that we were all ''forgotten victims''( which was not something I said). The man was very clearly angry with me. He told me about his partner who had been injured by a drunk driver and was ''crippled'' and in constant pain. Why did I feel so ''hard done by?'' he wanted to know.

I felt absolutely terrible; I cried, and I could not sleep for hours afterwards. What could I say to him? I wrote the book to help people understand about PTSD. I push for an inquiry because I believe that having all the facts in one place and sharing the learnings will save lives in future, and bring healing and greater understanding and preparedness to defeat terrorism. I speak out when asked to, by people who want to speak, but whose burdens are greater than mine, and who cannot face the cameras, the public. I get flamed for it, by people who want to have a go at me for their own reasons. I try to develop a thick skin. I do not have a thick skin yet.

I cannot help everyone, how can I? I can only do what I can, and what I think is right. When I was attacked and left for dead in 2002 there was no publicity, no charities set up to support me, no media asking questions, no politicians expressing concern. But I did not ever think of writing long emails to people I saw on the news asking them what they had to ''feel hard done by'' about.

I do not think his anger at me was appropriate: there is no hierarchy of suffering, this is not a competition, and being the victim of a high-profile event brings with it a different set of problems to being the victim of a terrible event that does not make the papers. Speaking out means you get brickbats. I should be used to it by now. But his email was a slap in the face. And I do not know what I can do or say to help him. I do feel very sorry for him and his family. I do not know what it must be like to be him, or to be his permanently injured wife. But I do not suppose that he knows what it is like to be me, or to be Thelma struggling to get money to pay for a new £10,000 prosthesis and £85 a session physiotherapy, two years on, or how it feels to be anyone else battling their demons and injuries, their grief and their ghosts.

I really hope the book helps people. I hope what I am doing is right. I suppose I should prepare for more people to hurl their anger at me, because they see me on TV and in the news and think I am making a fortune from this, milking it, trying to be a celebrity or whatever. Yeah, right. If they knew, they wouldn't say it. Or maybe they still would, I don't know.

I hold onto this: that people I care about have heard me and held me and supported me, and told me that I should keep going. And that is enough; it has to be.

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Tuesday, June 12, 2007

PTSD study request

Passing this on as I know quite a few people who have been through PTSD or who still suffer from it read this blog....

Dr Matthew Whalley and a team at University College London are looking for volunteers to help complete a study into the effects of trauma and depression on memory. The team are testing a theory of memory function in post-traumatic stress disorder (PTSD) and the study involves writing about a traumatic or upsetting experience, and then having an MRI scan to measure your brain activity while you complete a simple memory task. They are looking for three groups ofvolunteers:

1) Participants who currently suffer from PTSD
2) Participants who are currently depressed
3) Participants who survived a traumatic event but who did not develop PTSD.

If you meet any of these criteria and would be willing to travel to central London to take part in the study please contact Dr Matthew Whalley on m.whalley@ucl.ac.uk or 020 7679 5365. Volunteers are paid for their participation. For more information about the study see: http://tinyurl.com/y529sr

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Friday, February 16, 2007

SSRIs:'How I got hooked on Happy Pills'

Excellent, thought-provoking article from my friend and fellow KCU-er Kirsty, who was on my train on 7th July. Kirsty was prescribed Citalopram for Post Traumatic Stress Disorder. She has written a double page spread in the Independent about her attempts to come off the drug...
'On the Monday, I began to feel weary and cold, and the chill found its way to my bones. I couldn't concentrate or keep still; I was shivering to my core. The week continued with lethargy and exhaustion and my appetite started to fade. On Wednesday night, I woke suddenly, startled by a shudder. It was freezing and dark and my body was convulsed with fitful shakes. I hauled myself out of bed and piled on the layers - jumpers, socks and even a hat. I turned the heating up high and flung a blanket over my bed, all to no avail. This was the cold turkey of heroin addicts; it felt like a scene from a movie. Eventually, it subsided, but it was quickly replaced with biting nausea. I forced myself from my nest, staggered to the bathroom and was violently sick...'

'How I got hooked on happy pills'
UPDATE: I'm allowed to say its Holly Finch, so if you want to comment to the article's author, head over to Holly's blog

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